Thought I would explain a little how the HIV sector is funded.
- Donations from the general public including a legacy left in a will, a charity fundraising event, sale of merchandise.
- Local Councils & Local Primary Care Trusts tender for providers for HIV services they want to offer. Organisations then only provide support if they are paid to do otherwise will usually refer you to the local provider.
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Government also funds some organisations directly. Click here for an example.
- Government also tenders for HIV services.
- Drug Companies make grants that you can apply for. In some cases they also donate.
- Grant Bodies. Here you make an application for funding for example Elton John Aids Foundation.
- Some money is available though the Patient and Public Involvement programme (PPI).
There seems to be many sources of income. However this doesn't seem to translate in a diversity of service. Typically one organisation gets the funding in one area. If its an organisation you prefer not to deal with you can be left with no other choice. It is highly competitive and those with adequate resources can often win tenders to the detriment of smaller, more locally driven voluntary service providers.
This is a contentious issue and from my last year it seems to be more divisive than constructive, but that's only my view.
Given that service follows the payment. There really is no national HIV charitable presence. Merely those who represent the lions share.
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Written answer 16th March from www.theyworkforyou.com
Neil Gerrard (Walthamstow, Labour) | Hansard source
To ask the Secretary of State for Health what programmes his Department is funding to encourage people with HIV to be advocates forHIV prevention.
Dawn Primarolo (Minister of State (Public Health), Department of Health; Bristol South, Labour) | Hansard source
The Department funds both the Terrence Higgins Trust and the African HIV Policy Network to deliver targeted work with the groups most affected by HIV, gay men and people from African communities, respectively. Both organisations will develop initiatives on positive prevention in 2009-10. National advocacy will be developed through the national programmes in partnership with other voluntary organisations consulting with key stakeholders in the community.
Under a Freedom of Information request to the London Borough of Camden and Islington, I asked how much was received and was allocated under the Dept. of Health budget for 2008/2009 and other spending allocated to HIV/AIDS. The replies received were:
The Aids Support Grant is broken down in the following way:
£192k on posts: 1 senior practitioner and 3.5 social workers.
£184k forecast care costs are broken down as:
£66k Domiciliary care
£57k Nursing
£53k Residential
£6k Direct payments
£2k Individual budgets
£4k on the voluntary organisation the Terrence Higgins Trust.
In addition to the ASG monies, Islington will spend the following in 2008/09:
£122k approx to the pan-London HIV prevention and treatment programme, which is delivered through a number of contracts including work streams for men who have sex with men, African communities and treatment and prevention information
£356k to sexual health promotion services viaCamden
£51k through a range of local voluntary organisations working specifically with HIV/ Aids
£30k to Positive Women
£16k through Supporting People to One Housing for Housing related support
£1.5k to Terrence Higgins Trust
Subtotal £576,500
Total £956,500
This does not include the £11m (approximately) which Islington will spend on HIV treatment and care in 2008/09.
The above is the total identifiable Social Services spend for Aids/HIV clients. There may also be support being given to HIV/Aids service users as part of other service areas such as Older People based on those respective service areas' criteria. Remembering that service users do not have to disclose their HIV status, we are not able to easily identify this spend.
For housing/accommodation, referrals would normally be made via Housing Referral Co-ordinators in Housing Aid Centres, Housing Area Offices. Service users would have access to benefits such as Housing Benefit under the national eligibility policies surrounding those benefits.
You may find it helpful to go back toCamden
NB. The followings exclude Camden Primary Care Trust expenditures
DESCRIPTION
2008-09
Budgeted Expenditure
Disabilities Team: social care provision
£195,370.00
AIDS/HIV Blocks Contracts
£207,120.00
Home Care
£20,000.00
Direct Payments
£50,360.00
Packages Of Care In The Home
£74,800.00
Nursing Care Homes (spend as of Dec)
£53,780.00
Sub-total
£601,430.00
Grant to non-statutory Orgs (Voluntary sector providers: Complementary care-Living Well, Positively Women, THT immigration legal,Camden 
)
£174,100.00
Grand TOTAL
£775,530.00
Incomes:
DESCRIPTION
2008-09
External Income
AIDS Support Grant
£413,000.00
AIDS Support Capital Grant (Body&Soul)
£28,000.00