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FOI request - London Specialised Commission - HIV Budget for 2009/10, 2010/11 and 2011/12 (if known)

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kevin
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Today I have submitted a Freedom of Information request to LSG asking:

With regards to our previous communications and the LSG response http://benefits.tcell.org.uk/sites/default/files/documents/London%20Consortium%200809.pdf< , I write to further to enquire what is the London Specialist Commission HIV budget is for the period 09/10, 10/11 and 11/12 (if known) and could you advise in what area’s this budget has been spent.

http://www.londonspecialisedcommissioning.nhs.uk/<

http://www.london.nhs.uk/<

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Reply Letter 061010.pdf50.69 KB
Reply Letter 061010 pt2.pdf24.54 KB
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kevin
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LSG FOI response

HIV Annual Budgets

I refer to previous correspondence in respect of a request made under the Freedom of Information Act 2000 (FoIA) regarding the annual budgets for HIV Services for financial years 2009/10, 2010/11 and 2011/12.

The annual budget information is as follows:

2008/09 - http://benefits.tcell.org.uk/sites/default/files/documents/London%20Cons...<

2009/10 - £246,444,582

2010/11 - £251,649,751

With regards to the budget for financial year 2011/12, this is currently not available, but will be presented at the London SCG Board meeting to be held in January 2011.

I would also like to point out that our Annual Report for 2009/10 will shortly be published and made available on our new redesigned website http://www.londonspecialisedcommissioning.nhs.uk/about_us<

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kevin
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LSG FOI revised response

I have posted under the main story the revised information recieved from the LSG.

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kevin
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Additional response LSCG - FOI answer

A further question was raised with the London Specialist Commissioning Group regarding a HIV Consultation, I have today received a response. (see attached file)

Also the 2009/2010 accounts are published at http://www.londonspecialisedcommissioning.nhs.uk/about_us<

A list of patient forums can be found at http://tcell.org.uk/page/patient-forums<

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anonymous (not verified)
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FOI request submitted to HPA re: cost of treatment of £360K

I submitted a request to the Health Protection Agengcy to enquire about the suggested costs of treatment for someone living with HIV.

My request: Dear HPA, I understand that the HPA is quoting a treatment figure of someone with HIV over a lifetime to be £360K, please could you provide you details to substatiate this as my figures suggest I have asked NAT to clafity it treatment value of £360K, based upon http://benefits.tcell.org.uk/sites/default/files/Reply%20Letter%20061010...< London budget of £236m supporting a mimium of 50,000 people (45,000 of though living within London) costs £4,720 x 25 years = £118K. Thank you.

HPA response: Thank you for your interest in our initial calculations of the lifetime costs of HIV infection. 

In the 2009 annual HIV report the HPA estimated the HIV-related life-time costs for diagnosed
individuals; this calculation was preliminary and  based on literature that suggests the ART
cost for an individual represented between 56% and 73% of the overall cost.

Using these proportions as a baseline we were able to take current ART costs and extrapolate
the figure to represent the total cost for an individual. The overall figure of between 280K and 360K
was calculated assuming that an individual diagnosed at 36 years (median age at diagnosis)
would have a 37 year treatment period, using current rates of ARV coverage.

We are working with modellers and academics to refine our estimates.

This overall figure is not comparative to the London budget due to a range of reasons.
The estimated figure produced by the HPA is a generalised figure based on ART costs.

Not all people living with a diagnosed HIV infection receive ART
- current guidelines suggest treatment begins once CD4 cells drop below 350 cells.

In your calculation you assume that all individuals are on treatment.

In addition ART costs within London are not comparable to ART costs elsewhere in the UK.

Finally we calculated that an individual diagnosed at 36 years will have 37 years on treatment.

The £236K (should read £236m) which you are comparing to the estimated 280K-360K is the budget
received to treat all individuals for 2009/2010 and not for one individuals life time cost.
 

kevin
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Additional request to HPA for clarification

Thank you for your email and comments, with reference to the LSG response £155m was spent on ART and given some 39,000 people on treatment would cost £4428pa.

My assumation is based upon the real to costs advised by the LSG and used an average per cost per person. http://benefits.tcell.org.uk/sites/default/files/Reply%20Letter%20061010...<

We know from the HPA figures it suggests 50% reside within London / 50% outside. The figures I used are that of the HPA no of people diagnosed less the number of deaths = no.of people living with HIV/AIDS. This does differ that which the HPA used of accessing care some (25% less).

We are fournunate to have the LSG in london and through their published accounts and my FOI request can be present the figures spent on HIV in London, this may differ as you suggest with the rest of the country and submit this evidence should be used to dispell the higher figures used?

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kevin
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Additional HPA response

To recap, we have clarified how the estimates are calculated, and you are keen to ascertain why national estimates for the costs are higher than the costs for London. 

The figures we quoted are an average cost based on the NHS drug lists.  However, there are variations in drugs costs nationally due to regional contractual arrangements.  Commercial confidentiality precludes the sharing of procurement prices and the HPA does not have access to this commercially sensitive information. However, we do know that cross-London consortia arrangements, the drug costs are cheaper in London than the average national cost.  

In order to ensure consistency it is appropriate for the HPA  to use NHS list prices for drugs as this is the baseline price and most accurately reflects the national picture.

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kevin
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FOI request - LSCG - additional information

I have submitted a FOI request to the London Specialist Commission  Group asking a further question.

The HPA reports that 28,285 (current SOPHID figures) reside in London and accesses care. I asked the HPA did they know the number of people who access care in London and lived outside the area, this figure is 2,891 in total 31,176.  http://www.hpa.org.uk/Topics/InfectiousDiseases/InfectionsAZ/HIV/Accessi...<

I have therefore aksed the LSCG to respond to.

"In addition to my previous FOI and your published accounts, please can you advise of the £236m how much of these monies were recharged to other PCT for those costs of treatment and services living outside london accessing services in London?

We know from the HPA that some 28,285 residents in London access care an an estimated 2,891 reside outside. This will then enable us to look at at london costs and london people."

For London, this will be of further interest http://twitter.com/APPG_HIV_AIDS/status/23061847913529344<

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kevin
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London Specialist Commissioning underspend £9m PCT budget

Each year the LSCG forecast and budget for HIV services, each London Authority then pays for the LSCG to administor the collected funds, upon further investigation of the LSC 2009/2010 annual report http://www.londonspecialisedcommissioning.nhs.uk/index.php?assetId=225&a...< it shows a surplus of £9m listed for HIV/AIDS.

In a time where HIV treatment centres are refering non HIV medication and non related HIV treatment to the GP's with additional burden for both the patient and GP's, why would such a practice/option be asked of us, were we consulted?

The remit and criteria set by the PCT restricts what the LSG funding can be used for, through the Freedom of Information request we know were the monies are spent. This unused monies could be used to support people/children with respite, help address the funding gap in local authroties and other support services to help people living with HIV/AIDS. http://benefits.tcell.org.uk/forums/aids-support-grant-may-not-be-safe-a...< and http://benefits.tcell.org.uk/forums/hiv-sector-funding-cuts-and-benefits...<

Given that now GP's will be leading the way on service delivery and provision, this is a good time to suggest you write to your MP, write or contact your local counsil http://www.writetothem.com/< ,  submit your views on current consultations http://benefits.tcell.org.uk/forums-keywords/benefits/general-news-infor...< and help support your local community.

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kevin
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London SCG Board Meetings for 2011

The London SCG will meet in public on four occasions in 2011, the dates are:

Monday 14 February 2011
Monday 18 April 2011
Monday 20 June 2011
Monday 19 September 2011

All meetings will be held from 14.00 - 16.30, venues for the meeting will be advertised on the website nearer the date, if you would like to attend the meeting please e-mail mailto:communications@londonscg.nhs.uk<

http://www.londonspecialisedcommissioning.nhs.uk/a/16<

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kevin
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LSCG FOI initial response to 2009/2010 Budgets

An initial response response has been received by the LSCG and having asked for the information to:

With regards to my previous request and your response dated October 2010 http://benefits.tcell.org.uk/sites/default/files/Reply%20Letter%20061010.pdf< , please could you advise the NHS spend to date and for the period on HIV treatment and care as broken-down by therapy, infrastructure, in patient care, diagnostics and other medication.

Click here< for LSCG letter

Click here< for LSCG second response

Click here <for LSCG third response

Additional note, also refer http://benefits.tcell.org.uk/forums/ensuring-access-hiv-care-and-treatme...<

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kevin
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LSCG - PPE information

Following on from the last Patient and Public Engagement subgroup meeting on 19th April, one of the actions discussed was for the PPE members to send their comments / suggestions to John Holland regarding the draft patient information leaflet that was discussed at the meeting (re-attached <for your convenience).

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kevin
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HIV drug prescribing in London
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kevin
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NAT statement on changes to HIV drugs prescribing in London

NAT statement on changes to HIV drugs prescribing in London

refer http://www.nat.org.uk/Media%20library/Files/Policy/2011/NAT%20statement%...<

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kevin
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London SCG projected costs for HIV Treatment in 2010/11

Click here< for the LSCG response. (This response and additonal information has been fowarded to the House of Lords Committee on HIV/AIDS in the UK which is due to publish it findings by July 2011). Click here< for additional information.

HPA suggest that 28,285 are accessing care in London, 2,891 access services in London that reside outside. <
 <
Its suggest that in total 92,000 people live with HIV/AIDS in the UK of which 69,000 of which 50% reside in London = 34,500 people.<
 <
The average amount spent per person on the ASG us £400 for both 2009/10 and 2010/11 this excludes the £3.1 capital investment from the DOH grant.<
 <
Cost of treatment estimate to be £8,500 per person up from the estimated £7.5K Positive Nation suggest a few years back.<
 <
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anonymous (not verified)
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Central London Community Healthcare NHS Trust publishes first Qu

Central London Community Healthcare NHS Trust publishes first Quality Account

Central London Community Healthcare NHS Trust (CLCH) recently published its first Quality Account covering the 2010/11 year. Quality Accounts are annual reports to the public about the quality of NHS services.

Chief Executive James Reilly said, “We welcome the opportunity to report to the public on the quality of our services, what we are doing well, where we have identified areas for improvement and what we plan to do to improve.

“We are committed to providing the best possible community healthcare services for local people. We received some really positive feedback from our patients about the quality of our services over the last year, particularly around treating patients with politeness, dignity and respect.

“To make sure that our improvement priorities reflect the priorities of our patients, the wider public and the people we work with, we involved different groups to help us put the report together. We involved patient and community representatives, our commissioners and our staff.

“We feel that the focus on getting our improvement priorities and forward-looking actions right has provided us with an excellent platform for embedding a culture of continuous quality improvement here at CLCH.”

The priority areas identified in the CLCH Quality Account focus on: improving discharge processes from hospitals to the community, strengthening results of clinical and patient reported outcomes, involving patients more in designing their own care, improving service models and developing integrated pathways of care, and developing a more detailed understanding of patient experience in order to improve quality.

CLCH provides community healthcare services, including community nursing and health visiting, across the boroughs of Hammersmith and Fulham, Kensington and Chelsea, Westminster, and – from 1 April this year – Barnet. It is the first year that community healthcare providers have been required to produce Quality Accounts and coincides with CLCH becoming a NHS Trust.

The CLCH Quality Account can be found on the Trust’s website, www.clch.nhs.uk<. For more information, or to request a hard copy, contact the CLCH Communications team via email to communications@clch.nhs.uk<.

http://www.mynhsalerts.london.nhs.uk/2011/08/central-london-community-he...<

anonymous (not verified)
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Commissioning London’s HIV Services
anonymous (not verified)
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Changes to Public Health in London

Pan-London approach

The Government is considering options to provide powers and responsibility for Public Health across London not just the individual boroughs.  This might include putting the newly formed London Health Improvement Board (LHIB) on a statutory footing.  This means the Mayor of London would be allowed to deliver city-wide action on behalf of the LHIB.<
 <
Department of Health consultation closes today, more<
 <
http://lgbtconsortium.org.uk/news/changes_public_health_london<
anonymous (not verified)
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Cost of HIV treatment for London 2010/11 £247 million
anonymous (not verified)
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London Sexual health Programme (LSHP)
anonymous (not verified)
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FOI request to LSCG re: Budget 2010/11 - breakdown

anonymous (not verified)
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London Strategic Health Authority 2010/11
anonymous (not verified)
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My care, I care: London HIV patient engagement exercise

Duration: December 2011 - May 2012

As part of a larger review of HIV services in London, the London Specialised Commissioning Group< (SCG) has commissioned Sigma Research to investigate the views of people with diagnosed HIV about the NHS HIV services provided to them. The research will consist of a survey and qualitative focus groups.

The self-completion survey is available to complete online now at www.mycareicare.org.uk<. The survey will also be promoted by London advocacy and AIDS service organisations. In addition paper copies of the survey will also administered by dedicated fieldworkers in all the 28 specialist HIV clinics in Greater London.

The survey will cover: demographics, current service use, motivations for service choice, aspirations for service development and broader social care needs. Sampling and recruitment will be controlled to ensure a sample broadly representative of the population of people using HIV clinical services in London and ensure representation from all 28 London clinics. Focus groups with key groups of people with HIV will investigate in more detail motivations for service use, satisfaction with services and aspirations and suggestions for service development.

Funded by the London Specialised Commissioning Group< the research will be conducted between December 2011 and May 2012. Survey and qualitative fieldwork will take place between February and April and a full public report will be available in June 2012.

All data collected will be bound by the confidentiality policy< of Sigma Research. The project has been approved by the Ethics Committee of the London School of Hygiene & Tropical Medicine<.

Key contact: Peter Keogh<

http://www.sigmaresearch.org.uk/projects/hiv/project54<

anonymous (not verified)
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THE NEW APPROACH TO THE NHS, PUBLIC HEALTH AND SOCIAL CARE

THE NEW APPROACH TO THE NHS, PUBLIC HEALTH AND SOCIAL CARE - NAT

refer http://www.nat.org.uk/media/Files/Policy/2012/March-2012-%20NAT-The-New-...<

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